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My Job: A Chronic Fatigue Syndrome Chronicle #15
We humans define ourselves in terms of what we can DO. With CFS you have an existential crisis, cause you think, “If I can’t DO, who or what AM I?” Chris B I walk to the wooden cubbies in my school’s...
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Christmas in Hawaii – A Chronic Fatigue Syndrome Chronicle Continues
Christmas Week, 2013 Okay, so we all know the physical and emotional stresses for ME sufferers brought by the holidays. This year, I’m afraid, I added heaps more by agreeing to spend Christmas week in...
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Nineteen Years and Counting – A ME/CFS Story of Perseverance From Tasha
My Shrinking Life – 19 years and Counting …. and Still Hopeful of a Reprieve! – Tasha’s Story This is a long and involved story of my journey with M.E. The reason behind it is to show the problems...
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“Is it Time To Give Up Trying?” Thoughts at Age Seventy From ‘A Chronic...
I felt particularly sick for a long time before our trek out west from New Jersey– woozy and aching and listless – and liable to crash miserably after almost anything, like unloading the dishwasher or...
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Carrying That Weight: A Weightlifter’s Chronic Fatigue Syndrome Story
It was at about the six-month mark that I realized my case of mononucleosis from last year might be morphing into ME/CFS. It was a shocking thought. My Workouts A supremely fit Jamison pre-ME-CFS I’d...
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Persisting Without Exception: An Interview with Andrea Whittemore-Goad
Prelude Opinions about the Whittemore-Peterson Institute post-XMRV run the gamut from appreciation to anger. In this prelude to the interview, which is not about those issues, I offer up some...
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Is It Time To Give Up Trying Pt. II: Breaking the Addiction for a Cure
“I do not hope for a cure or a radical positive change in my condition; instead I believe in the possibility of pleasurable moments.” Carol Lefelt I am overwhelmed by the large number of responses to...
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From International Traveler to 43 Square Meters: An ME/CFS Story From Sweden
(Anne’s is a difficult story but it’s a good story in a way because it demonstrates the full force of this illness. Anne’s story is reminiscent of Jenn Brea, Jamison Hill and Mary Dimmock’s son’s...
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Why Are Doctors Skeptical & Unhelpful about Chronic Fatigue Syndrome? Pt I
(Thanks to Julie for allowing Health Rising to reprint her original blog posted on The Last Word on Nothing) Eight years ago, collapsed on a neurologist’s examining table, I asked a naive question...
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More Musing on Malaise
If ‘malaise’ doesn’t adequately describe my dreadful condition after too much exertion, it does fit another consequence of ME/CFS. After so many years of trying to pace myself successfully (whatever...
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Aug 8th – Honoring the Struggle of the Severely Ill People with ME/CFS
‘An M.E. patient feels effectively the same every day as an AIDS patient feels two weeks before death.’ Mark Loveless, Infectious Disease Specialist. Today, August 8th is Severely Ill ME Day, a day...
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Christmas in Hawaii – A Chronic Fatigue Syndrome Chronicle Continues
Christmas Week, 2013 Okay, so we all know the physical and emotional stresses for ME sufferers brought by the holidays. This year, I’m afraid, I added heaps more by agreeing to spend Christmas week in...
View ArticleClik here to view.
Nineteen Years and Counting – A ME/CFS Story of Perseverance From Tasha
My Shrinking Life – 19 years and Counting …. and Still Hopeful of a Reprieve! – Tasha’s Story This is a long and involved story of my journey with M.E. The reason behind it is to show the problems...
View ArticleClik here to view.
“Is it Time To Give Up Trying?” Thoughts at Age Seventy From ‘A Chronic...
I felt particularly sick for a long time before our trek out west from New Jersey– woozy and aching and listless – and liable to crash miserably after almost anything, like unloading the dishwasher or...
View ArticleClik here to view.
Carrying That Weight: A Weightlifter’s Chronic Fatigue Syndrome Story
It was at about the six-month mark that I realized my case of mononucleosis from last year might be morphing into ME/CFS. It was a shocking thought. My Workouts A supremely fit Jamison pre-ME-CFS I’d...
View ArticleClik here to view.
Persisting Without Exception: An Interview with Andrea Whittemore-Goad
Prelude Opinions about the Whittemore-Peterson Institute post-XMRV run the gamut from appreciation to anger. In this prelude to the interview, which is not about those issues, I offer up some...
View ArticleClik here to view.
Is It Time To Give Up Trying Pt. II: Breaking the Addiction for a Cure
“I do not hope for a cure or a radical positive change in my condition; instead I believe in the possibility of pleasurable moments.” Carol Lefelt I am overwhelmed by the large number of responses to...
View ArticleClik here to view.
From International Traveler to 43 Square Meters: An ME/CFS Story From Sweden
(Anne’s is a difficult story but it’s a good story in a way because it demonstrates the full force of this illness. Anne’s story is reminiscent of Jenn Brea, Jamison Hill and Mary Dimmock’s son’s...
View ArticleClik here to view.
Why Are Doctors Skeptical & Unhelpful about Chronic Fatigue Syndrome? Pt I
(Thanks to Julie for allowing Health Rising to reprint her original blog posted on The Last Word on Nothing) Eight years ago, collapsed on a neurologist’s examining table, I asked a naive question...
View ArticleClik here to view.
More Musing on Malaise
If ‘malaise’ doesn’t adequately describe my dreadful condition after too much exertion, it does fit another consequence of ME/CFS. After so many years of trying to pace myself successfully (whatever...
View Article
